Tuesday, October 14, 2014

A random story about Jacob

 *All names, locations and information was made up to protect the innocent*



Once upon a time there was this little boy named Jacob. 

He had 3 big brothers and sisters who always seemed to have fun.  Jacob wanted nothing better than to run and play with his brothers and sisters. 
But because he was so little, he was often left behind.  

Poor Jacob.  He was so sad.  Being little was nooooo fun. 


One day, little Jacob decided he wasn't going to stay home any more.  
So he filled his backpack with goodies, and decided to go on an adventure of his own

During his travels, he want to the botanical gardens,

National Forests,



And even the grasslands of Africa.


Every day was an adventure for this little fellow. 


After traveling the world, little Jacob decided it was time to go home.  
He packed up his bags, and made the long journey back to his family.
His big brothers and sisters greeted him with open arms and told him how important he was to the family.  They had missed him soooooooo much!  Jacob never realized how important he was to his family, and decided that he would save the rest of his travels for another time when he was much much older.  

The End!

P.S. ~ This was just an excuse to showcase some of my favorite Jacob pictures from the last couple of weeks :)

Thursday, September 4, 2014

It's that time of year again - SCHOOL!! (Along with several random photos collected over the last several months!)

Jacob is ready to go back to school. 

How do I know?  Well, it didn't take a rocket scientist this morning.  We were taking his big sister, Courtney to her 2nd day of kindergarten.  Parking is pretty bad at Court's school, so we had to park a ways away and then walk.  As we waited at the crosswalk, several large, yellow school buses passed us and Jacob began jumping up and down and grunting like a monkey.
A couple of times, he tried to run to the bus's doors so that he could climb on.  After my heart stopped once too many times, I grabbed him and put him on my hip to carry the rest of the way to the school.  

Once inside the school, I put him down to walk next to me. He yanked his hand out of mine, and began running down the hall, grinning from ear to ear.  Finally, half way down the hall, I caught up with him - After he'd made 3 new friends, of course.  

We discovered that his big sister was supposed to start the day at the playground to wait until the bell rang, so we took her outside to the toys.  Again, Jacob began jumping up and down excitedly (his 'happy dance'). However, much to his dismay, rather than letting him play with the other kids and climb all over the toys, I was cruel enough to walk him away from the playground!

Thus ensued a world-class tantrum including throwing himself onto the ground, wailing like he was being tortured, and laying limp on the wet grass as I tried to pull him to a standing position.  Needless to say, he was not happy.  (By the way, the pull-up on his head in the picture above is CLEAN - just in case you were wondering.)


Eventually, I wound up putting Jake back on my hip and carrying him back to the car, listening to him whimper each time a bus drove by us again.  (The picture above is Jacob, drawn by his big sister)




By the time he got home, Jacob was furious at me.  Apparently, he doesn't like to be teased with the hope of going back to school only to have his hopes snatched from him.  Who wants to spend the day with your mother anyway??

Lucky for us, Jake's school starts next Tuesday.  Woot! Woot!
I don't know whose happier.  Jacob or me?

I'll give you three guesses. 

Wednesday, August 27, 2014

The Holy Grail of Speech Therapy - Gemiini.org

For those of you who know me, or have spent any significant amount of time with Jacob, you know that at nearly 4 years old, he is still pretty much non-verbal.  No seriously.  Not a word.  Barely a syllable.  Or a SOUND.

For a child who is at, or above age in nearly every other aspect of his development, his speech has been the bane of my existence.  

Now, don't get me wrong.  The boy communicates JUST FINE.  He just doesn't talk.  He nods and shakes his head for yes and no, uses several dozen signs, grunts or screams when he wants my attention - depending on where in the house he is in relation to me, and he will come, grab my hand, and direct me to anything he wants - pointing to the offending object.  

But me, being the crazy stickler that I am, insist on wanting him to talk.  I understand how important speech is to his development, and his ability to communicate with the general public as he grows.  In my book, stubbornness and laziness are not a good enough reason not to talk. 

I have worked tirelessly with the speech therapists over Jake's little lifetime to get the boy to say something. And on occasion, he will get excited and say a word or two, but never anything consistently.  Why go through the hassle of talking if you can communicate just fine in other ways, right?  Gah!

In my quest to find a way to get the little boy to talk, I stumbled across a website called Gemiini.org.  I think I talked about it on a previous post and said I'd follow up.  Well guess what.  I'm following up.  Because the program is FREAKING AWESOME!

In the 3 weeks since we started Gemiini, Jake has progressed more than he has in nearly all of his lifetime.  Seriously.  No joke.  (I am not being paid or compensated in any way for this review, by the way). 

So, after 2 weeks, I began to notice that Jake had picked up on several of the new signs (animals) shown on the videos.  I also noticed that he was starting to try to say some of the words. This is HUGE for me.  Because up until now, he wouldn't even try to talk. 

Now, 3 weeks later, I can actually discern a couple of the words he is learning as he watches the videos.  What's even more important than the fact that my little boy is trying to talk, is the amount of noise coming out of his mouth!  Jake has gone from a few occasional grunts, to babbling constantly.  He's working those mouth, cheek, and tongue muscles, which for those who don't have children with Down syndrome, is a BIG thing.

Children with Trisomy 21 are notorious for having big tongues and low muscle tone in their mouths.  So the babbling is a HUGE step.  And an important step in the speaking process.  Think about it.  Non-Trisomy 21 kids start out babbling before anything truly coherent comes out of their mouth.  Which means Jacob has taken the next step in speech development and is well into the beginning phases of speaking.  Wahoo!  Can you tell I'm excited? :)

So, are there any cons about Gemiini?  I only found two things that gave me moment to pause.  First off, it's kind of expensive.  At $50 - $90 per month, I balked a bit.  But it only took me a few minutes to talk myself into the price tag.  Specifically because Jacob's speech is so doggoned important to me.  Secondly, because Gemiini has a sliding pay scale, and third, because this was the expense I decided to use Jake's Developmental Disabilities reimbursements on for the year.  To me, Jacob's speech is the single most important factor in his development right now.

Secondly, the videos are a bit hokey.  With that being said, Jacob DOESN'T CARE.  He's 3 1/2.  He doesn't care about the quality of the video.  He just likes looking at the pictures of animals, and talking to the older kids on the videos.  There are no bells and whistles to the videos, and it did, admittedly, take a week or so for Jake to sit still long enough to get anything from the videos.  But I sit him down in front of the computer at breakfast and let him watch the video while he's eating and it seems to work just fine. In fact, now he gets pretty excited when I turn it on.  So, does it really matter?  No.  

Plus, we're only talking 10-15 minutes of video per day.  It's not very long.  His attention span can't handle much more.  

So, in a nutshell:  Gemiini.org.  Worth the investment?  Absolutely.  I'd recommend it to everyone.  




I'll keep you posted on his progress!!!

UPDATE (03/16/15)  We're finally back onto Gemiini!  Check out our latest post: http://upsanddownsoftheallreds.blogspot.com/2015/03/update-on-gemiiniorg-its-been-long-time.html