Showing posts with label speech. Show all posts
Showing posts with label speech. Show all posts

Friday, October 7, 2022

Jacob's Expressing Himself and Showing his Artistic Side

 I'd often wondered how Jacob would learn to express himself if he couldn't talk. 

I could tell by watching him that he had way too much to say, to remain uncommunicative with the world. 

It did not surprise me when he took an interest in drawing. 

Initially, he scribbled. A LOT.  But soon, he began adding structure to his lines. Spiders. People. Monsters.  Lots and LOTS of monsters. He's obsessed with them. But he's also obsessed with anything slightly scary. 

During ABA he drew pictures instead of practicing his letters. Then he started asking for paper when he wasn't in ABA. Soon, I was seeing marks on the wall (sigh - there went the new paint job!) and then he was asking for different things to color with. Instead of a ballpoint pen, he wanted a colored pen. Then he tried colored pencils. And back to colored pens.                                            

In June, I took him to Hobby Lobby, and we perused the art aisle. He was like a kid in a candy store!

"What do you want?" I asked him, pointing to the row of paints, pens, and pencils. 

He pointed to a package of colored pens.

"Pens?" I asked.

He nodded.

"Use your words. P-eh-nz," I said, enunciating each word.

Jake stared at my mouth and mimicked each letter. "Ph-uhhhhh-ssssss,"

I nodded and smiled. "Good job." Jerking my head toward the cart, I said, "Throw them in."

He grinned, giggled, and tossed the pens into the cart, then clapped his hands and did a happy dance, hopping from foot to foot as he giggled.

We walked a couple of feet and did the same thing with paints. And again with chalks and papers. In the next aisle, we found canvases. They were on sale—half-off!

We pushed the cart down the aisle while I looked for 8X10 canvases. They'd be the perfect size for Jake and his behavioral tech when she came to work on Wednesday. They could go outside, sit on the grass, get a little sun, and paint to their heart's content without worrying about a mess. 

"Mom," Jake said from behind me.

I turned to his voice, and he was standing in front of a massive white canvas, about two feet tall and four feet wide. Oy. 

"Uh, that's a little bigger than I'm looking for," I said. "Let's find something smaller."

Jake shook his head and pointed to the ginormous canvas.

"It's too big, Jake."

He pointed to the canvas and shook his finger. "Dis."

I glanced at the price tag.  Yep. Half-off.  The massive canvas was only going to cost me about fifteen dollars. I glanced at Jake and squinted. Would it end up being a jumbled mess? Or did he have something in mind? Sometimes it was hard to tell. But for fifteen bucks I was willing to throw caution to the wind and let him embrace his creative side. Who knows? Maybe he'd surprise me.

"Okay. Grab one," I said. 

Jake's eyes widened, he giggled, then he pulled a giant canvas from the aisle and handed it to me. I picked it up to put it in my cart and chuckled. Too big to fit. I was going to have to carry that thing with one hand the whole rest of the trip. 

Thank goodness we were almost done. 

Our final stop was in the acrylics aisle, where I let him choose any ten colors he wanted. Hues of reds, oranges, pinks, and purples.  


His grin was as big as his face and he laughed and did a funky skip dance all the way to our car. All weekend he asked to paint, and I kept reminding him he needed to wait until ABA on Monday. 

As soon as Ameila showed up, Jake was pointing to the canvas and the paints and dragged her, and the person shadowing her, out to the yard where they could paint. Thank goodness it was a sunny day. He probably would have painted in the rain if he had to.

He gave each person a paintbrush, and I brought out some paper towels and water.  Then, he got to work, pouring his paints onto the giant canvas and swirling them all over the white surface. 

He grinned, and pointed to the others, making sure everyone got a chance to add their art to the project. We made smiley faces, and monsters, and wrote letters, and painted our names. He added a wheel, a heart, and a whole host of designs we couldn't interpret, but I'm sure meant something special to him. 

When we were done, we left the canvas on the grass to dry till after dinner. 

I expected him to forget about it, but he was the one to remind me. We went outside, retrieved his masterpiece, and he had me hang it on the wall of his bedroom where he could see it from his bed. 

A few days later, he added three more canvases, decorated with other behavior therapists.  Then, he added drawings made with ballpoint pens and written on lined paper. Words he wrote by himself. A spider (actually, lots of spiders!), people, butterflies, hearts, and anything else he was in the mood to write. Each page was taped to his walls, or on his ceiling near his bed. A few he had me put up above my computer so I could see them when I worked. 

As the weeks went on, the drawings became more precise. The hearts were less boxy, the lines smoother and rounder. The humans began to have fingers and necks and arms and hair and faces. The monsters had more legs and body parts.  Now, four months later, he continues to draw. Nearly every day he has something new to offer me. 

I pulled out an old camera I bought for when our oldest daughter played sports. It's a very nice camera. Not professional grade, but definitely not for selfies. 

Now that I don't have anyone in sports, I don't use it nearly as often as I should. I can do everything I need with my old iPhone. 

So I loaned it to Jacob and wound up with 137 photos of his toes, his knees, the rug, and his belly.  But there were a couple of gems too. Hopefully, if his interest continues, I'll be able to share some of those photos as he gets a better understanding of how the camera works. 

I'd love to see the world from his eyes. 

Thursday, March 10, 2022

Explosion of Words

 It's been so long since I've done an update on Jake. 

Life has been a whirlwind of activity. It always is, especially when he has six hours of ABA (Applied Behavioral Analysis). 


We're fighting insurance, and have been for months now.  Despite the fact that ABA is clinically proven to be effective for those with Down syndrome, insurance only wants to pay for those who have Autism. But six hours per day of ABA would mean nearly $2000/week in fees without insurance. 

Our doctor has given a diagnosis that insurance has said qualifies him for ABA, but they still won't pay for it.  It's been months and we're still fighting them. I'm not going to lie. I'm beginning to sweat. Any moment, I can get a phone call from our ABA provider cutting us off. 

I've tried to get a second opinion, and they're 18 months out for appointments. 

I have only one more person we can call.  We actually made an appointment with them four months ago, but they changed their registration proceedures and took us off the appointment list. So now we're starting all over again. 

Add COVID to the mix, and everything is getting done at a snail's pace. It's brutal. 

But do you know what isn't brutal? 

Jacob's recent explosion of words. 

Yes, so many new words!

Words like 'thank you' used to be signed by blowing a kiss. Now he says, 'dank you.'

Today, as we watched Abominable before bed, I heard words like "home" and "Buddah" "fish" "baby" "water" "whoop" "snake" and a few other words. He's actively using and practicing words. And he delights in seeing my reaction to each new word. 



Plus, he's beginning to see the power of words; telling me what he wants to watch rather than being forced to choose between two movies of my liking. Counting, and asking for ten more minutes before going to bed, or asking to play with his big brother. Asking for (chicken) "nuggets" when he's hungry, or a "smooth"(ie) if he wants something different. 

Last week, my husband and I went on vacation alone for the first time since Jake was born. Jake didn't like it. Our adult son was watching Jake and his sister for the week, and said that several times, Jake would come to him and sign simultaneously while saying, "you, me, drive, mom, dad, now." He wanted Nathan to drive him to get us from wherever we were. Right NOW. 



When I came home late Monday night, Jake was already asleep in bed. In his usual fasion, he stirred late in the evening, so I crawled into bed, and put my arm over him. He rolled over, opened his eyes, and looked up at me. A grin washed over his face and he said, "Ahh, Mamma." Then he wrapped his arms around my neck and hugged me until he fell back asleep. 

Life is good. 

Speech, when we hear it, is amazing. 

It's hard to believe Jake is no longer a child. He's an eleven year-old man-child with meaty hands, and mischevious grin.  And I love him to death!



Friday, February 3, 2017

FINALLY....an Explosion in Speech!

For anyone who has followed me, or my journey with Jacob, you know that speech has been one of our biggest struggles.

Getting ready to go to speech therapy! 
Not only is he getting 30 minutes of speech at school each day, but he has another 30 minutes per week at a private agency.

Jacob's progress has been excruciatingly slow.  But there's been progress, nonetheless.  When he started at Youthful Horizons, he was essentially mute.  He didn't even grunt much.  We had him using Geminii system, but he got bored quickly.  And I think that's because the Geminii system is geared more towards people with Autism.  There was very little emotion in the programs, and it relied heavily on repetition.  All good things, don't get me wrong.  But he was bored. So we topped out on his progress pretty quickly, then backslid for a while. And, at $99/month for the program, we couldn't afford to keep using something that wasn't working.

About that time, we found Debbie at Youthful Horizons She and Jake have been an awesome fit.  She's mellow, nice, and she has all the best toys--at least Jacob seems to think so!

I've learned to appreciate the process of learning to talk.  First there is learning to push out air forcefully enough to make noise. Then you must learn to control your muscles enough to manipulate your lips enough to create specific sounds. And don't forget about placement of the tongue, jaw, and awareness of the cheeks, face, and other muscles.  All of these things had to be addressed in proper progression, while concurrently teaching him other means of communication via the PECS system and more sign language to enable communication RIGHT NOW.

Jacob is nearly 6 1/2 now.  Sign language is still his primary language, but now he's added a few words to his vocabulary.  He can say things like purple, bye, dad, mom (pronounced ba), Elisha (pronounced uheesa), he calls Courtney (seesa), bus, please (pronounced psss), blue (boo), there it is, that, dog, Craig (his PT), and occasionally, when he's in a good mood, I'll here his say Debbie.  13 words and 1 phrase. 

I'll TOTALLY take it!

And on those days when I'm frustrated that he still prefers to yell rather than use his words, I remind myself that we couldn't understand his older brother (who is normally functioning and actually quite smart) until he was 12! 

Patience, grasshopper.  Patience.


Friday, February 28, 2014

Are Those Words I Hear?

How can it be that it's been 4 MONTHS since my last post?!?!

Oh, that's right.  Life has a way of seeming to slip through your fingers at mock speed when you're the mother of four incredibly wonderful, but unbelievably different children.  Living life with an over-achiever 18-year old senior, a just-figuring-himself-out 14 year old, a precocious smarty-pants-wants-everyones-100%-attention 4-year old, and ever-curious-crazy-busy-wonderfully-delightful 3 year old sometimes takes its toll on me.  

But I wouldn't change a single minute of it for all the money in the world (don't quote me on that in the midst of the chaos though!)

Jacob is already 1/2 way through his first year of pre-school and the differences are startling to say the least.  Who knew that 2 1/2 hours per day, 4 days a week would make such a difference?  But boy howdy it has!
(Jacob's school picture)


Since school has begun, Jacob has finally begun to say words!!  I'm not saying he's speaking in full sentences or anything, but considering the fact that before pre-school we were lucky if he'd even make a sound, his attempts to vocalize are massive!


Although most of it would be considered merely grunts by the lay man (isn't that always the case when any child is beginning to speak?), he's been generous enough to accompany some of his words with their coordinating ASL sign as well.  Now Jake will not only wave good-bye, but say it as well.  As a fully intelligible word, mind you!  He also says "hi", "mom" (but only when he's mad and can't get my attention any other way), "Elisha" (sounding more like 'la la' - but I'll take it!), "Nate", "no", "dad" and my all time favorite: "three" - which is usually because he is COUNTING to three!!!! Woohoo! 


In addition to the awe-inspiring phenomenon we dub 'speaking' I've noticed that Jake has mellowed.  Yes, MELLOWED!  This is the little boy who wakes up and hits the ground running full-speed from area to area creating disaster faster than a Level 5 tornado.  If you take a moment and watch, one cannot help but marvel at his efficiency.  It's quite impressive, actually, how someone so little can create so much destruction in such a little time. 

This too, has diminished significantly over the last few months.  When we left Children F.I.R.S.T. one of the goals they had for him was to have Jacob sit at an activity for 3 whole minutes before losing interest.  To date, I have seen him "read" books, color, sit for an entire meal at dinner, and, as I write, he is sitting at the back sliding glass doors staring out at the newly fallen snow covering our back yard.  - Oops!  I spoke too soon.  He's now pushing his chair to the cupboards to see if he can pour the cereal out onto the floors!...and now into the living room where he's knocking off all the throw pillows (sigh).  OK, he's not PERFECT!  But his attention span (for things he's interested in) has increased from a minute or two to as long as 10 or 15 minutes for the truly engrossing activities. 

Yes, I would dub pre-school a success.  :)



(Our favorite family past time is listening to Jake laugh!  It's the best sound in the WORLD!)


Now...if I can only motivate myself to get him potty trained.....