Showing posts with label Downright Living. Show all posts
Showing posts with label Downright Living. Show all posts

Friday, July 24, 2015

A New Twist to Hansel and Gretel


 Hansel & Gretel Children's book with Down syndromeReading is a passion of mine. It's one I have somehow passed on to most of my children.  So when I find a book that includes my other passion, Down syndrome, I sit up and take notice.
Recently, I was given a free children's book, Hansel & Gretel, to review.  What makes this book different from all the other Hansel & Gretel Books? Hansel has Down syndrome.  

The first time I read the book, it was by myself because I didn't want to expose my children to something inappropriate by accident. At first, I was a little bit sensitive about how Hansel reacted and his family's opinion of him, but then I realized that that was the point: depicting some of the misnomers, or poorly conceived notions much of society has associated with Down syndrome. 
Then, toward the end, Hansel became a smart, independent thinker with a big heart who was easy to forgive and see others for who they were.  Hmm.  Sounds about right. 

I examined the illustrations, which were actually felt depictions of each scene.  Those were absolutely breathtaking and worth examining again.  The details were...wow.  You've gotta see it to believe it.  Whoever made the felt scenery is amazingly talented. 

Finally, I presented the book to my 6-year-old daughter.  There was too much wording on the pages to maintain Jacob's attention, but Courtney LOVED it.  She sat with me as I read the book, then took it from me and "read" it a second time by herself, checking out all the photos. 

As a parent with a child with Down syndrome, I would recommend this book.  It's not only entertaining, but it's an interesting twist on a classic story that is sure to open many opportunities for dialogue regarding Ds, and to show the world that Trisomy 21 doesn't equate uselessness.  

Wednesday, May 20, 2015

Jacob - A Little Brother in the Truest Form

 Down Right Living: Life with Down syndromeI've been updating many of my blogs over the last several weeks, and it's given me an opportunity to walk down memory lane.  Some of those memories were filled with laughter.  Others with sadness and tears.  But the strongest vein of thought I felt throughout the months and years with Jacob thus far has been gratitude that Jacob is in our lives.

Yes,  my 4 1/2 year old is stubborn, devious, likes to dump things on the floors...or beds...or behind couches...you get the idea.  But he's also a lover, a giggler, a hugger, curious, sweet, devoted, and constantly trying to show love toward me.  He's wise beyond his years, and yet impulsive as a one-year-old.  And...Jacob is a little brother in the truest form of the term.

Jake is only 18 months younger than Courtney, but only half her size.  So, why is it, that every time she walks in the room, he either A) follows her around like a puppy dog   B) Tries (and usually succeeds)  to tackle her.  That little boy LOVES to hear his sister scream and/or squeal.  It's like his very existence depends on how loud Courtney yelps.

At times it's frustrating, and other times, I can't help but chuckle.  It's one of hundreds of little reminders for me that, although Jake has Down syndrome, he is more like the rest of us than he is different.


 Help other families with Congenital Heart Defects. Donate NOW
Help us help others with Congenital Heart Defects. Donate NOW