OK, maybe not a record, but it's been a nice, quiet couple of days filled with baby steps of improvement. I'm sure that this is in no small part due to the fact that our dear friend Melissa (who, by the way has 6 children of her own!) took all 4 of my kids during they emergency room visit (yes! She had 10 children at once!) and proceeded to keep three of them for 2 days! That left us at home alone with Jacob in a nice, quiet, stress-free house for 2+ days. I have to say it was nice. And I think the lack of the usual chaos that usually ensues in our home seemed to make a difference on baby Jake as well.
Jacob is not only taking 26 ml an hour on his ND tube, but he's taking 1 oz. of formula every three hours (without puking!!!), and even nurses occasionally (also without puking!!). And to top things off, his gagging has gone down considerably the last couple of days. Now, if we can just get him to hold on a few more days!
We go in to see the cardiologist on Tuesday at 8:30 a.m. to (hopefully) get a concrete date on when his heart surgery will occur. And, if he has gained as much weight as I think he has the last few days, he will show up at this appointment at 10 lbs +, which is our goal weight for surgery. Then, after the 2-hour cardiologist visit, we'll spend some time with the Pediatrician regurgitating what the cardiologist told us and coming up with a plan of attack that will address all of Jacob's issues, who will take care of them, the sort of progress we are hoping to see, and what we need to do to see that progress. I have a feeling that we will be rattling more than a couple of cages on Tuesday.
All in all, I'm excited for Tuesday. Jake is beginning to improve physically, I think he's met his weight goal in spite of the feeding set backs, and he's even beginning to sleep on his own (i.e. not on my chest 24/7) for a few hours at a time. It is sooooooo nice! :)
Baby steps.....we'll take em!
HOORAY!!!!!!
ReplyDeleteWe we continue to pray for you guys (I love hearing my kids pray for Jacob!) and send all our good vibes to you Tuesday morning.
I wish I could take your kids for you, I think at least that Courtney and William would enjoy it and Elizabeth would pretend she had sisters.
Take care and good luck!